April 14 – 15, 2026 | Arlington, VA
Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress. That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the conversations and connections that drive science forward.
This immersive, 1.5 day event is designed to push boundaries and bridge gaps across the rare disease landscape. Through engaging case studies, interactive panel discussions, and extended audience Q&A, participants will explore critical topics such as:
Let’s break barriers and build progress—together.
Learn about emerging research methodologies, data sources, and case studies that can benefit all rare disease research.
Join thought-provoking discussions with regulators and leaders in rare disease research and clinical practice.
See how research strategies and collaborations can fortify and sustain your work in a rapidly shifting landscape.
When you sponsor the NORD Scientific Symposium, you are helping to create new pathways for progress and tackle some of the toughest challenges in rare disease research. Contact us to learn about opportunities to be a part of this event and boost your company's visibility.
Request Sponsorship Prospectus
The 2026 NORD Rare Disease Scientific Symposium will take place at the Renaissance Arlington Capital View Hotel.
Renaissance Arlington Capital View Hotel
2800 South Potomac Avenue Arlington, VA 22202
NORD has arranged a block of rooms at the Renaissance Arlington Capital View Hotel with the reduced rate of $299 per night on the nights of April 13 and April 14.
Book Your StayIf you are a member of the media, please contact [email protected] to register.
Section Head, Neuro-Oncology
Ann and Robert H. Lurie Children’s Hospital of Chicago
Assistant Professor of Pediatrics, Division of Medical Genetics
Duke University School of Medicine
Chief Executive Officer
Children's Tumor Foundation
Director of Research
Malan Syndrome Foundation