March 23 - March 24, 2027
in Alexandria, VA

NORD® Rare Disease Scientific Symposium
Advancing Innovation in Rare Disease Research

March 23 - March 24, 2027 in Alexandria, VA

Register Now

NORD® Rare Disease Scientific Symposium

Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress. That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the conversations and connections that drive science forward.

This immersive, 1.5 day event is designed to push boundaries and bridge gaps across the rare disease landscape through engaging case studies, interactive panel discussions, and extended audience Q&A.

Let’s break barriers and build progress—together.

Why Attend

Stay Ahead

Learn about emerging research methodologies, data sources, and case studies that can benefit all rare disease research.

Engage

Join thought-provoking discussions with regulators and leaders in rare disease research and clinical practice.

Adapt & Innovate

See how research strategies and collaborations can fortify and sustain your work in a rapidly shifting landscape.

Conference Venue

Tuesday, March 23 – Wednesday, March 24, 2027 at the Hilton Alexandria Mark Center in Alexandria, VA

Registration Information

Your registration for this in-person event includes the following:

  • Event Sessions: Access to all general sessions during the event
  • Meals: Enjoy breakfast, snacks, and lunch during the Symposium
  • Receptions: Attend the conference Welcome Reception
  • Networking Opportunities: Ample opportunities to connect with thought leaders, sponsors, exhibitors, and other stakeholders throughout the event

If you are a member of the media, please contact [email protected] to register.

2026 Advisory Committee

Annette Bakker, PhD

Chief Executive Officer

Children's Tumor Foundation

Jennifer Cohen, MD

Assistant Professor of Pediatrics, Division of Medical Genetics

Duke University School of Medicine

Christal Delagrammatikas, PhD

Director of Research

Malan Syndrome Foundation

Ravi R. Pathak, PhD, MBA

Medical Director, Lysosomal Storage Disorders, US Medical

Takeda Pharmaceutical Company

Angela Waanders, MD, MPH, MS

Section Head, Neuro-Oncology

Ann and Robert H. Lurie Children’s Hospital of Chicago

Susan Rhee, MD

Executive Medical Director, Clinical Sciences

Regeneron

Giovanni Passiatore, Ph.D.

Head of North America Medical Affairs

Chiesi Global Rare Disease









Subscribe for updates

Communication Preferences

By submitting this form, you are consenting to receive marketing emails from: National Organization for Rare Disorders (NORD), 120 Longwater Drive Suite 105 Norwell, MA 02061 – www.rarediseases.org

You can revoke your consent to receive emails at any time by using the Unsubscribe link, found at the bottom of every email.


Contact Information