Advancing Innovation in Rare Disease Research
June 2-3, 2025
The Grand Hyatt, Washington, D.C.
About
Rare disease breakthroughs require collaboration. Join a community of researchers, clinicians, industry leaders, and others at the NORD® Rare Disease Scientific Symposium to share knowledge, exchange ideas, and forge partnerships that advance progress for patients across all rare diseases.
The agenda will offer case study presentations, panel discussions, and extended audience Q&A on such topics as:
- Innovative Study Designs and Methods for Rare Disease Research
- Approaches to Address the Challenges of Small Trial Enrollment Numbers and Disease Heterogeneity
- Successes and Challenges of Global Clinical Trials
- Using Alternative and Real-World Data for Rare Disease Research
- Multi-Stakeholder Collaboration in Research
- Successful Strategies for Earlier Pediatric Inclusion in Clinical Trials
Why Attend
Collaborate and Influence
Contribute to critical discussions, forge valuable partnerships, and help advance equitable access to rare disease research and patient care.
Engage with Peers and Experts
Connect with other influential voices and stakeholders shaping the future of rare disease treatments, research, and policy.
Discover Innovations
Learn about cutting-edge research and regulatory advancements. Discover emerging trends and issues that are poised to redefine the landscape of rare disease.
Boost Your Company's Visibility — Become a Sponsor
When you sponsor the NORD Scientific Symposium, you are helping to create new pathways for progress and tackle some of the toughest challenges in rare disease research. Contact us to learn about opportunities to be a part of this event and boost your company's visibility.
Request Sponsorship Prospectus
Conference Venue
The NORD Rare Disease Scientific Symposium will take place at the Grand Hyatt in Washington, D.C.
Grand Hyatt, 1000 H St NW, Washington, D.C., 20001
NORD has arranged a block of rooms at the Grand Hyatt with the reduced rate of $399 per night on the nights of June 1 and June 2. You will receive the link to book your stay at the time of registration.
Registration Information
Your registration for this in-person event includes the following:
- Event Sessions: Access to all general sessions and breakout sessions during the event
- Meals: Enjoy breakfast, snacks, and lunch both days of the Symposium
- Receptions: Attend the conference Welcome Reception
- Networking Opportunities: Ample opportunities to connect with thought leaders, sponsors, exhibitors, and other stakeholders throughout the event
Register by April 30, 2025, to save $300!
Register Now
2025 Event Pricing |
Early Bird Pricing
|
Standard Rate
|
|---|---|---|
| Medical professionals (MD, PhD, Researchers, Geneticists, Post-docs) | $295 | $395 |
| Regulatory Agencies (FDA, NIH, and other federal agencies) | $295 | $395 |
| Patient Advocacy Groups (Chief Scientific Officers and Research Focused Leaders) | $199 | $299 |
| Industry professionals (Medical Affairs, R&D, Clinical Development Teams) | $1,900 | $2,200 |
Substitution and Cancellation Policy
Any cancellations received in writing on or before 14 business days of the event start date will be refunded, less a 20% administrative charge. No refunds will be accepted after Tuesday, May 14, 2025. (Requests for a refund received after Tuesday, May 14, 2025, will not be honored.) Your registration may be transferred to another member of your organization up to 24 hours in advance of the NORD Rare Disease Scientific Symposium.
In case of a conference cancellation beyond our control*, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice.
Please Note: Speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.
* Events beyond our control include severe weather conditions, natural and man-made disasters and any other similar events.