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Advancing Innovation in Rare Disease Research
June 2-3, 2025
The Grand Hyatt, Washington, D.C.
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Accelerating Breakthroughs Together: Join Us at the NORD® Rare Disease Scientific Symposium
Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress. That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the conversations and connections that drive science forward.
This immersive, 1.5 day event is designed to push boundaries and bridge gaps across the rare disease landscape. Through engaging case studies, interactive panel discussions, and extended audience Q&A, participants will explore critical topics such as:
- Innovative Study Designs and Methods for Rare Disease Research
- Approaches to Address the Challenges of Small Trial Enrollment and Disease Heterogeneity
- Successes and Challenges of Global Clinical Trials
- Using Alternative and Real-World Data for Rare Disease Research
- Multi-Stakeholder Collaboration in Research
- Strategies for Earlier Pediatric Inclusion in Clinical Trials
Let’s break barriers and build progress—together.
Why Attend
Learn about emerging research methodologies, data sources, and case studies that can benefit all rare disease research.
Stay Ahead
Learn about emerging research methodologies, data sources, and case studies that can benefit all rare disease research.
Engage
Join thought-provoking discussions with regulators and leaders in rare disease research and clinical practice.
Adapt & Innovate
See how research strategies and collaborations can fortify and sustain your work in a rapidly shifting landscape.
Boost Your Company's Visibility — Become a Sponsor
When you sponsor the NORD Scientific Symposium, you are helping to create new pathways for progress and tackle some of the toughest challenges in rare disease research. Contact us to learn about opportunities to be a part of this event and boost your company's visibility.
Request Sponsorship Prospectus
Conference Venue
The NORD Rare Disease Scientific Symposium will take place at the Grand Hyatt in Washington, D.C.
Grand Hyatt, 1000 H St NW, Washington, D.C., 20001
NORD has arranged a block of rooms at the Grand Hyatt with the reduced rate of $429 per night on the nights of June 1 and June 2.
See More DetailsRegistration Information
Your registration for this in-person event includes the following:
- Event Sessions: Access to all general sessions and breakout sessions during the event
- Meals: Enjoy breakfast, snacks, and lunch both days of the Symposium
- Receptions: Attend the conference Welcome Reception
- Networking Opportunities: Ample opportunities to connect with thought leaders, sponsors, exhibitors, and other stakeholders throughout the event
2025 Event Pricing |
Standard Rate
|
|---|---|
| Medical professionals (MD, PhD, Researchers, Geneticists, Post-docs) | $395 |
| Regulatory Agencies (FDA, NIH, and Other Scientific Experts) | $395 |
| Patient Advocacy Groups (Chief Scientific Officers and Research Focused Leaders) | $299 |
| Industry professionals (Medical Affairs, R&D, Clinical Development Teams) | $2,200 |
Substitution and Cancellation Policy
Any cancellations received in writing on or before 14 business days of the event start date will be refunded, less a 20% administrative charge. No refunds will be accepted after Tuesday, May 14, 2025. (Requests for a refund received after Tuesday, May 14, 2025, will not be honored.) Your registration may be transferred to another member of your organization up to 24 hours in advance of the NORD Rare Disease Scientific Symposium.
In case of a conference cancellation beyond our control*, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice.
Please Note: Speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.
* Events beyond our control include severe weather conditions, natural and man-made disasters and any other similar events.